Nerve Test

Lots of prickly sticks in my legs. 

Adding To My Care Team

I went to see a new neurologist today. I was searching for that ONE specialist in Tallahassee that knows everything about Multiple Sclerosis. I'm pretty convinced that doesn't exist. Anyway, while i was in the hospital a PA from this doctor's office visited me a few times. We clicked. I thought going here would be another step in the right direction. Frankly, the MS Center in New Jersey spoiled me. 

Anyway, we talked. He was upfront and honest that their office wasn't the facility for me. They deal with pain management. I wasn't in pain. The pipe dream I was sold by the PA vanished before my eyes. It was a good visit though. We talked about me going to see the specialists at Mayo Clinic in Jacksonville. I'd thought about it before and this appointment solidified that. 

Wrist Splints

My hands are coming back together. but they hurt. well, more so my wrists. The neurologist seems to think I may also have carpal tunnel.The massage therapists noted the tension in my wrist and arm (the tomahawk chop muscle). 

Nerve Tests and Copaxone

Happy Monday. Here's where we are with things. Sensation in my legs are pretty much back. Still some areas lacking but nothing i can "feel". Nerve Conduction today showed some nerve lacking but again not major. Concern now are my hands/arms. But can't do that test until May 28. I have an appt for wrist splints tomorrow.

Pregnancy wise. Went to the Maternal Fetal Medicine (High Risk) Doctor on Friday. Downside to THAT appointment, she doesn't "advise" travel during the remainder of this pregnancy (air pressures, current flair, etc). While she's not saying don't ever go, she suggested or recommended that if there are other options to seek them out. Work. Puerto Rico. Remember?!

The neurologist is working with the OB and MFM on the MS medication determination (injection of Copaxone). MFM seemed hesitant. I'll do some research. Eeeek @ Injections. But apparently it's fetus friendly. 

Moving Right Along

The OT and Water Aerobics has been wonderful.  I've regained most of the sensation in my body.  There's still a loss of sensation on my right side and hands. I can move them though.  I've tried driving. Still somewhat cautious as my grip and feeling isn't quite there.  Baby update... I'm 21 weeks, due 9/17. And it's a boooooy! 

Water Aerobics

Here I am. Ready for Water Aerobics 

Reading The MRI

Just left the primary care physician and he gave me the update on the MRI that I had while in the hospital. So there are some additional lesions now. Previously I knew they were between C2-C4 and the largest between C5-C6. Now it looks like the most pronounced are still at C5-C6 and also C6-C7. There is something at T2 as well impacting C2 C3 C4 & C5. Take a look at a spinal cord picture for a better understanding of those nerve functions. 

There also appears to be some noted plaques on the right posterial parietal lobe and bilateral parietal subcortical regions of the brain.

 He agrees that both occupational and physical therapy should be happening.