Thursday, February 20, 2020

Do I really have to go?

That's what i'm trying to figure out? I'm just trying to get back on my Gilenya. So, apparently I HAVE to have this follow-up visit with the doctor's at Mayo before I can proceed. I did tell them that buuuuut that fell on deaf ears. 

2/10 - Reached out to see when I can get the observations scheduled. 
2/14 - No reply. Sent another message because based on what the folks at Gilenya are telling me, they can send someone to me to do the first dose observation, locally, and not in Jacksonville. And I thought once I'd don the eye exam, I was ready to be scheduled. 
2/18 - I got a reply. They've received the meds and are scheduling. I asked if I could bring the medication back home and do the observation here. According to the Gilenya folks, I HAVE to do the observation in Jacksonville "based on my medical history". They actually told me that if I wanted to do it locally, I needed to have is prescribed by an local doctor. WHAT? And start this process over again?  
2/20 - Am I coming to my appointments? Of course I am. I'm trying to get this show rolling. But somewhere in there, now it's ok for me to take the meds with me? 

ugh, this back and forth was ridiculous. 

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